American Psychiatric Association's soon-to-be-released
Diagnostic and Statistical Manual of Mental
Disorders, 5th edition, the DSM-V, recognizes
the
overuse of the label
autism. The label gets out of hand as it evolves
into another alphabet soup in the form of
ASD (Autism Spectrum Disorder). Once the
word 'spectrum' is inserted, the label casts
a much bigger net and includes many disorders
that share little of the original core characteristics,
namely, social aloneness and inability to
process multiple stimuli. Many friendly but
socially awkward people are now called autistic,
same as many formerly diagnosed Asperger
persons. The result? The number of autistic
people have increase more than
six folds in the last 15 years.
I treated a four-year-old Korean American
girl a few years ago, who was diagnosed as
autistic by three psychologists from the
Autism Clinic of UCLA. The diagnosis was
based on her inability to communicate in
English, lack of eye-contact, and ignoring
of adult interaction in the testing situation.After
observing and working with her at her home,
my own analysis was simple -- she wasn't
autistic but had delayed language (both Korean
and English) development and she was shy
with strangers. I designed an intensive English
training program and short-term recall practice
for her, set up a home-school kindergarten
program, and instructed the mother to speak
only English, no matter how broken it was,
to her. (Father spoke fluent English but
was away a lot.) Once she felt comfortable
with me, she was friendly, sociable and even
joked with me in her own brand of English.
After nine months of treatment, she reached
grade level for English and math, and socialized
with me and peers readily. When UCLA called
to say they now had an opening for her in
their autistic program (there was a waiting
list to get in.) and urged the parents to
enroll, they wisely declined. Today, she
attends 3rd grade in a competitive private
school with mostly A's and has playdates
with friends. Did I cure her autism? No.
I just trained the skills that were deficient.
One could not imagine what could have happened
had she gone to an 'autism' school.
The use of ASD allows many children to receive
special funding, a situation in itself beneficial
for them. The new DSM-V will make many no
longer qualified for medical, psychological
and social services under the diagnosis of
autism. A Yale University
study estimates that "up to 40% of those
with autism as defined by the current criteria
would be excluded from such a diagnosis."
Many 'high-functioning' children and adults
would be excluded, which would also significantly
affects the 'cure rate' as published in literature,
since most of the cures happen in high-functioning
children. But when a diagnostic label gets
overused and misued, it loses its purpose
of pointing to specific treatment strategies.
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