CAN WE CURE AUTISM?
An article in the New York Times titled The Kids Who Beat Autism generated a lot of buzz. It is perfectly
understandable, such an affliction to a human
being which often causes untold havoc and
anxiety in the family would naturally compel
parents and professionals to seek a cure.
The desire is so great that we even had a
parent organization named Cure Autism Now
(which merged with Autism Speaks), and the
"Now" in the namesake speaks volume
for the urgency.
The NY Times story describes how approximately
9 to 10% of autistic children grow out of
it and become totally normal, especially
after receiving treatment of Applied Behavior
Analysis (ABA) and intensive training from
the parents. It asks repeatedly why some
other children never became normal, no matter
how intensive the ABA and how involved the
parents are.
To me, the most likely explanation is that
the curable autistics are really not true
autistics. They might have shown symptoms
of autism like poor eye contact, language
deficiency, social avoidance, or repetitive
movement like flapping or rocking, but their
brain's learning capacity is intact. On the
other hand, a 'true' autistic person suffers
from cognitive defects or developmental disabilities
that make it difficult for them to ever totally
be able to process complex linguistic information
or social stimuli. The cognitive limitation
makes repetitive movement an easier form
of self-stimulation or expression. We all
self-stimulate, like rocking in a chair,
twirling our hair, biting our finger nails.
But as we acquire more language and other
experiences, we either grow out of it or
incorporate it as one part of a much vaster
array of self-stimulation like listening
to music, playing video games, taking daily
strolls, practicing the violin, jazz dancing
in front of the mirror, etc., all of which
require higher cognitive processes than just
flapping the hands or rocking in a chair.
If one defines autism as a pervasive deficiency
of the brain, it would not be difficult to
understand why autistic people never grow
out of it unless the brain can become normal.
Of course, where these deficiencies are in
the brain remain a conjecture, and hence
the problem of diagnosing autism. The label
is not a medical diagnosis as it is not based
on existence of physical markers but is based
on external behavioral features, and hence
the unreliability of the diagnosis and
overinclusion of population. Without clearly
defined markers in the brain, some children
could be simply labeled autistic just because
they show the behavioral features.
I too, 'cured' a four-year-old girl who was
diagnosed as autistic by the famed UCLA Autism
Clinic's two psych assistants (graduate students)
along with the supervisor. The symptoms were
lack of eye contact, poor language, asocial
behaviors, unaware of social settings. She
was put on their waiting list for the Autism
class. Her mother, the main caretaker, spoke
broken English and talked to her mainly in
Korean while father speaks fluent English.
My diagnosis: language delay due to cultural
forces and perhaps some deficits in learning
to be bilingual, which in turn led to shyness
and withdrawal especially with strangers
in a clinic or school. We started intensive
ABA (2 hrs twice a week 1:1) and also home
school for kindergarten, focusing on English
communication, math, in-seat behavior, and
tantrum reduction. Within six months, she
was chatting away with me and socializing
with peers in English. When the UCLA clinic
called to inform availability in their autism
class, parents wisely declined. After one
year, she was enrolled in a regular popular
private school for 1st grade, and by 2nd
grade was among the top of her class.
Was this autistic child 'cured'? I don't
think so. She was not truly autistic to start
off with. She showed symptoms of autism but
her brain was basically intact and the true
causes of her earlier withdrawal, tantrums,
or language delay lie elsewhere. Like ADHD,
the Autism Spectrum paradigm will allow for
a cure of some children, although I doubt
if the cured children really belong there.